The story behind the book

Jolien van der Geugten is mother to a six year old son with ichthyosis. When he started primary school, she missed a powerful story to tell his classmates about his skin disease. This book explains in a positive way what it's like to have ichthyosis. Jolien: "It is important for children with and without a skin disease, to be able to understand each other. When children know that everybody has a unique skin, sometimes with flakes, scars or dry spots, this helps to prevent prejudices.".

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The story

Luke and the tiger is a positive story about a boy with ichthyosis.

Luke wakes up in the middle of the night, because there is a tiger next to his bed. The tiger can't find her babies, and she asks Luke for help. During their adventure, Luke discovers that various animals have their own story regarding their skin, just like he has.

This book has been available in Dutch since May 1, 2021. Jolien van der Geugten, the author, is planning to publish an English translation by November of 2021. For more information, please send an email to the author or look at

Readers from The Netherlands about the book

I didn't know anything about the skin disease ichthyosis. This story provided a nice and easy introduction.

Eileen (mother of two children)

The story explains in a clear and playful way what it means to have ichthyosis. All important symptoms are included in the story.

Suwela (mother of a son with ichthyosis)

I read the story to my children. They never once interrupted me and listened attensively!

Nikki (mother of two children)

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Book presentation

The first copy of the Dutch version of the book was presented to Suzanne Pasmans, MD PhD, dermatologist/immunologist, professor in pediatric dermatology in Erasmus Medical Centre in Rotterdam, The Netherlands.

Professor Pasmans is a member of the medical board of the Dutch patient association for ichthyosis. 

Who is this book for?

This book is for children between 3 and 7 years old and can be read at home and at school. 

In the back you will find more information about ichthyosis and ideas on how to talk to children about the skin in general and a skin condition. Actually, everyone has something to see on his or her own skin. Think of a dry spot, a scrape, a scar, a birthmark and freckles.

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“Finally a children's book about Ichthyosis! It is so important that children recognize themselves in the world around them”

Karin Veldman, President Patient Association for Ichthyosis in The Netherlands